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From about the age of 4, our daughter started to have occasional soiling accidents in her knickers. This started to become more regular and having potty trained fine at about 18 months we were struggling to understand why she would be doing this. At the time we were in the process of moving house and within six months my daughter started school and therefore put the accidents down to a way of dealing with the emotional stress. However, things became increasingly worse. She would actively stop herself going to the toilet by sitting on her heal and be regularly soiling her knickers. She had settled in very well at school and had a good group of friends but her behaviour at home was getting increasingly difficult, with full on tantrums and screaming. When she had an accident, we would get cross with her, as we believed she was just being lazy.
The situation became a lot more serious in January 2017, when my daughter started having severe stomach cramps and being sick. We went to A&E where they gave her some laxatives and said she was impacted. We were told to give her laxatives until she went to the toilet and then to stop. However, after the initial clear out, the problem started all over again. My daughter could go a week or more without having a bowel movement. It was then we decided to get professional help from a specialist, Dr Hii.
Dr Hii saw our daughter in early 2017 and carried out various tests and x-rays to identify any allergies, abnormalities and whether she was still constipated. The x-ray clearly showed that she was backed right up and Dr Hii helped us through a full disimpaction of the backed up poo. With his great understanding of the issue, it became clear that this was not something that can be solved overnight but that it was all about regular bowel movements, medication, close monitoring and most of all gaining an understanding that our daughter was not doing this on purpose. In fact, she had lost complete sensation of her bowels and the soiling was leakage of overflow poo, seeping around the blockage.
Dr Hii got us to try a variety of different medications and diets to find the right combination that would work for our daughter. He also gave us some great tips, such as sitting on the toilet for 5 mins at the start and the end of the day. We have eventually found a balance of medication that gives us regular bowel movements and 1 year on from first seeing Dr Hii we feel we can see the end in sight. We are still doing our twice a day toilet sits, and keeping a poo diary, but we have now managed 1 month with no accidents and my daughter is now dry at night, another side effect of severe constipation.
I am so pleased that we took the step to get professional help from Dr Hii, as now, aged 7, our daughter is so much more outgoing, confident and calm. Her behaviour has really improved and we now talk openly about the things which cause her anxiety so we can deal with them, rather than her storing up her problems in her bowel.
I have no reservations at all about recommending Dr Hii for other children with similar issues – it has truly been a life saver for us.
Dr Hii has been very thorough and it has been good to try and get to the bottom of Alex’s problems after we had hit a wall with the GP. We were able to ask any questions and to make decisions about treatment.
Femi has been brilliant as he is so good with children and always available to answer questions and let Alex know what to expect when taking blood or during his endoscopy and ph study. The care at the hospital was excellent when Alex was a day patient, and Dr Hii made sure to come and see us after the procedure. Femi provided excellent care and made sure Alex was reassured and knew what was going to happen. Alex was especially pleased with his post-procedure chocolate bar!
Through a process of elimination, Dr Hii has helped us to rule out lots of possible causes, and we are now trying a dairy and soya free elimination diet which seems to be working for the gastro symptoms, it is great to see Alex feeling much better.
All the staff were very helpful and gave me all the explanations I needed. They also answered any questions or worries I had. The tests have helped me and the nurse Femi has been especially fun and nice.Son
We are very grateful for Michael and Femi’s excellent care. It is very stressful for parents when your child is undergoing various tests and we felt they were not only looking after our little girl but also our family.
They kept us up to speed with progress and made a difficult process far smoother than we thought it would be.
Thanks so much for looking after Lula yesterday during her Hydrogen Breath Test and blood tests. Lula has previously fainted after having a blood test and so is quite nervous about having them, however, you were very kind and reassuring to her which made the blood test a lot easier. She also really liked you and being able to watch the Boss Baby film whilst having the Hydrogen Breath Test all really helped with her anxiety.
We were recently referred to the Paediatric Gut Investigation Clinic after months of stomach issues with my 3-year-old son.
Our initial consultation with Dr Hii was very thorough; he asked lots of questions to get a full understanding and history of my son’s condition.
It was not at all rushed and we had lots of opportunities to ask questions. We felt very at ease with Dr Hii, he was very patient and explained everything very well. My son loved asking for a sticker at the end, nothing was too much trouble!
Following this appointment, we then had to have blood tests and a skin prick test. The appointment for this was booked very quickly and what could have been a stressful/traumatic ordeal for my son was very straightforward and uncomplicated. Femi, the nurse, was excellent with children. He chatted and played with my son, putting him at ease and reassuring him throughout so that he hardly even knew that he was having his blood taken.
He made the whole experience as ‘fun’ as it can be for a small child having blood taken!
We received the tests results within a week and this was followed up with another appointment with Dr Hii, who again explained the diagnosis well and provided us with all the information we needed to treat this condition.
Having followed the advice given by Dr Hii, it has now been 8 weeks and after our final appointment, we have now completed our treatment with the Paediatric Gut Investigation Clinic.
We are very impressed with the whole experience. It can be a very traumatic time not knowing what is wrong with your child but both Dr Hii and Nurse Femi offer an excellent level of service, expertise and knowledge and I would highly recommend this service.Monicka
During the past few months I have been undergoing treatment at Gatwick Park where I have met the most amazing team of doctors and nurses. When I first got there I felt scared because I didn’t know what they would do, but the minute I met Dr Michael Hii I felt relaxed as he was so kind. I was told I had to have a blood test I was very nervous but I did not have time to get nervous. In no time I was introduced to a nurse called Femi who made me laugh and I was no longer scared. He gave me some magic cream and I did not feel a thing even though he took so much blood he still kept me giggling for the whole time I was in there.
The results came back very quickly and Dr Hii was able to talk to my mum and explain the treatment I would need. Within under two weeks I was undergoing treatment and as I had more and more treatment (blood transfusion colonoscopy endoscopy and many cannulas and blood tests) it became fun to go to the hospital as Chris, Dr Hii and Femi were so kind and super funny if you ever have to meet any of the team there is no need to get anxious they so kind and nice.
I went back to see Femi a few weeks ago to take him some biscuits I had made. He scoffed the lot and I’m told he loves carrot cake (he loves it when you give him food related gifts) although my journey has not quiet ended yet the team has made this stressful experience feel so much easier, I never worry about going to the hospital and I’m excited about the future. (Diagnosed with Cohn’s disease in 2017)
Rachel (PGIC Embassador)
My daughter Rachel became ill at the beginning of 2017, after a few visits to the GP she was referred urgently to see Dr Hii. He took the time to talk directly to Rachel very much including her in the consultation. That first appointment he requested blood tests which Femi the nurse performed that day. Rachel had never had a blood test before so was understandably anxious but Femi was fantastic putting her immediately at ease. The fact that the tests could be done the same day was a massive bonus as there was no time to worry further.
Femi made Rachel feel relaxed and even managed to make her smile and laugh while he took several tubes of blood. Making the first time such a positive experience has been a massive help as Rachel has subsequently had so many more bloods tests and several canula’s now and she never worries about them. The results of the bloods came back extremely quickly and Dr Hii rang to discuss the results.
Two weeks later Rachel was back having a colonoscopy and endoscopy under general anaesthetic at Gatwick Park. Dr Hii ensured he came to talk to Rachel before the procedure and came to speak with me while Rachel was in recovery. Femi made sure he was also there to check Rachel in, fit her canula and generally look after her for the whole day nothing was too much trouble. On diagnosis of Crohns disease Dr Hii organised an appointment with Chris Smith the dietician to discuss special drinks Rachel was to take to help her immediately feel better. The communication and support we as a family have received has been fantastic! So positive was the experience Rachel has no fear of hospital visits and Femi is her all-time favourite nurse!
The service we received from the Gastroenterology Department at the Gatwick Spire Hospital was extremely good from initial referral to getting a diagnosis. My son was dealt with swiftly and professionally whilst the nurses, Femi in particular, made him feel relaxed and informed Matthew of what was going on every step of the way. He was booked in for stomach and intestinal biopsies within a week on our initial appointment with the consultant and on the day of admission the nurses explained exactly what would happen with the procedure and he was visited by both the consultant and anaesthetist before he went down to theatre in case he had any questions.
The procedure itself went smoothly and the consultant came up to see me and tell me what he had found before my son was brought up from theatre. When my son had recovered from the anaesthetic and was brought back up to the ward the consultant, Dr Hii, came up to see us again and explain to my son what he had found during the procedure. We were then given an appointment a week later to discuss the results of the biopsies. The whole experience was smooth and we were informed at all times of what was going on and what the next step would be and could email or ring the department at any time if we had any questions in between appointments. These were always answered promptly and efficiently.
Thank you for all your support Femi during this difficult time. Matthew and I really appreciated your prompt response in dealing with everything and all the appointments that you booked for us. You really are a gem and I hope that the doctors you work with all appreciate how hard you work and how efficient you are!
I took my baby to see the gut clinic following concerns about constant irritability, poor weight gain, loose nappies and some enlarged lymph nodes. After seeing Dr Hii we were sent for some bloods done by Femi and stool tests which came back reassuringly normal.
We were trialled on Ranitidine incase there was an element of reflux and I was told to go dairy free as it was possible my son had CMPA. We also trialled special formula at night to see if this helped.
Unfortunately, although his weight improved the irritability didn’t. We had reassuring follow up with the team who were fantastic but it wasn’t until he turned 6 months that things improved. I wonder whether he just needed time for his gut to mature and start weaning for the irritability to settle.
I think it’s tough being a first time mum and potentially over medicalising a healthy child but I appreciate the support provided by the team, the reassuring investigations and the ease of accessibility.
I am so grateful to Dr Hii and Femi to carry out some tests on our 18 month old child. We were constantly being let down by our doctors and the hospitals regarding looking into what food allergy or food intolerance our daughter had, and it was causing her to have flare ups of her skin, constant diarrhoea for months and months, and bloating/wind. From the moment I first spoke to Femi on the phone, he has been very professional and guiding us step by step through the process they were going to do to find out the problem. 3 days later we were seen by Dr Hii and Femi at the clinic, straight away they put us at ease and I know our daughter was in the best hands. We found out lots of good information and at the moment are eliminating dairy and soya from her diet, and already only a few days later there is a huge improvement.
So thank you to Femi and Dr Hii – my only regret is we should of made an appointment to see you sooner, so this would of been sorted a long time ago!
Our 13 year old son (normally fit and well) was admitted as an emergency to our local NHS hospital with severe abdominal pain. He presented with a grey pallor and continual indescribable stomach pain. I can only liken it to him being in childbirth! Urgent bloods, chest and abdominal x rays were taken. The doctors initially thought he may have a collapse lung or an acute infection. However, all bloods and x rays were normal apart from the abdominal x-ray showing severe constipation. He was commenced on a low dose of Movicol and also medication for abdominal migraines. However, there was little improvement, the pain continued, he had no appetite, was dehydrated and suffered nausea for over a week. He was admitted and discharged from hospital a number of times. During this time I became absolutely desperate to get help for my son. I ended up googling abdominal pain and that is when I came across Dr Hii and his team. I phoned the number in the evening not expecting to speak to someone. Surprisingly the lead nurse answered and he was absolutely fantastic, providing information and support. Our appointment with Dr Hii was excellent, we felt very reassured for the first time of his diagnosis of chronic constipation. Probably linked to him having a very bad episode of flu 6 weeks earlier. He started him on a clear plan of medication and diet. As well as providing back up if things detoriated again. We are so grateful to Paediatric Gut investigation for their professional expertise.
We first went to the paediatric gut investigation clinic in desperation about 12 months ago. My daughter had been symptomatic for about 2 years previously and we had tried everything without success. For many months I put it down to “normal” stomach upsets and then it became so frequent and severe that she was missing school. She was feeling lethargic, was very grumpy – probably partly as she was a teenager but also I am sure as she was unwell all the time. It was horrible to see that she also would not go to friends’ houses as she was so frightened of being unwell. The GP was not particularly helpful and the first consultant we saw provided antibiotics for a gut infection and suggested she stay off Gluten. We went Gluten free for a year which did not help. We also tried alternative therapies which were very costly and did not work at all.
As soon as we spoke with Femi at PGI we felt in safe hands. He is definitely the best nurse we have ever met and wonderfully crazy to gain my daughters confidence. Femi explained to us the process and how to find trigger foods. I was convinced it was something serious as she had been so poorly for so long. All the normal diets of no dairy, gluten, eggs had not helped.
Following a number of tests several things were uncovered and treated, one being a bacterial overgrowth which was treated and gave short term relief. After various tests and guided by Dr Hii and Femi we finally found the culprit – Fructose!
I should have had more faith when Femi told us it is nearly always food related. The relief when she stopped taking fructose (apple juice) was instant and we are delighted with the service we received.
I have to say it has all been a massive relief. It’s been nearly three years that Henry has felt unwell to varying degrees. I thought it was diet related but never even thought it could be a sugar! The breath test was so conclusive it was such a positive piece of information for Henry to see and try to understand fructose malabsorption. We’ve done lots of reading and tried a few things since the elimination diet and it’s clear there are some foods that really react. It was unclear in the past because there seems to be a delay and that’s why we couldn’t work it out.
When he gave up wheat he knew after three weeks it wasn’t that. This time after 5 weeks he’s personally very careful! I can tell he’s feeling better. The most important thing is that the acid reflux trouble has gone and there’s no medication involved!
Thank you, Femi and Dr Hii, this has been a long journey, sometimes frustrating but the testing has been so worth it! Look forward to meeting the dietician!
Victoria and Henry